Some people teach us about life through their words. Others teach us through the way they choose to live.
In this episode of Leaders With a Mission, we sit down with Stacy Levy to talk about her daughter Ellie, a young woman born with cystic fibrosis who somehow carried a kind of wisdom, humor, courage, and light that reached far beyond her years.
Ellie knew life was fragile. She knew her body had limits. But she also knew something many of us forget when life gets busy, comfortable, or overwhelming: being alive is still a gift worth showing up for.
Through Stacy’s eyes, we get to meet a daughter who refused to let illness become the whole story. Ellie found joy in hospital rooms, built deep relationships with the people around her, laughed with a sense of humor that made others feel alive, and taught her family that hope is not a small thing. Hope is what keeps us in the game. Hope is what helps us take one more step. Hope is what reminds us that even in the hardest chapters, love can still be present.
This conversation is about grief, but it is also about life. It is about what happens when a mother carries her daughter’s light forward and turns pain into service. Through Ellie’s Army Foundation, Stacy continues to support families walking through difficult medical journeys, giving them practical help, emotional support, and the reminder that they are not alone.
There is something deeply powerful about a life that continues to bless people even after it has ended. Ellie’s story does that. It makes you pause. It makes you ask better questions. Am I really living? Am I loving fully? Am I waiting for life to be easier before I allow myself to be happy? Am I using what I have been through to bring light to someone else?
This is the kind of conversation that stays with you.
Watch and listen to Leaders With a Mission on YouTube, Spotify, and Apple Podcasts, and join us for an episode about courage, hope, leadership, and the kind of love that becomes a mission.
If Ellie’s story moves you, visit elliesarmy.org to learn more and support the work Stacy continues to carry forward.
00:00 Ellie’s Story and the Power of Hope
03:10 Living Fully While Facing Cystic Fibrosis
06:15 Ellie’s Humor, Courage, and Personality
09:05 The Philosophy of Death and Dying
12:20 How Ellie’s Army Was Born
18:05 Helping Families Through Medical Crisis
24:00 Breaking Ellie Out of the Hospital
26:35 What Ellie Teaches Us About Truly Living
30:10 Finding Joy Through Service After Loss
39:40 The Day Stacy Said Goodbye to Ellie
43:50 How People Can Support Ellie’s Army
45:00 Leadership Through Ellie’s Eyes
47:00 Choosing Hope When the Work Gets Heavy
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